Murphy – When Jordan and Zach Mixon’s daughter, Peyton, was diagnosed with the rare, incurable disorder gangliosidosis, known as GM1, they began to look at life differently,
Peyton Claire Mixon – who was born on April 11, 2023 – missed some developmental milestones, like rolling over and lifting her head up. She was getting sick from normally mild illnesses. Expedited testing by Scottish Rite led to Peyton’s diagnosis the following March.
This disease debilitates in many ways, according to the website cureGM1.org, including “developmental regression, mobility deterioration, seizures, visual impairment and neurodegeneration.”
Buoyed by families, friends and church, the Mixon family of four’s priorities include ensuring that Peyton’s medical needs are met and expeditiously filling Peyton’s life with many marvelous, magical and loving experiences. In August, the Mixons went to Panama City Beach, Fla. They also spent time at Vogel State Park Campground in Blairsville, Ga.
This month, Peyton has been experiencing intermittently low oxygen saturation and the possibility that she had a seizure.
Peyton took an ambulance to Children’s Healthcare of Atlanta, where tests found no seizure activity at that time. She was admitted and remains there as of Monday morning. Peyton is receiving supplemental oxygen, while other symptoms – like fever, cough and stomach issues – have emerged at various times.
Jordan requests prayers for her and Zach. They are mentally drained and have terribly missed their older daughter, Preslee.
The latest update available Sunday was a Facebook post by friend Cindy Chastain.
“Our little Peyton has not had a good day today. She’s having issues again with her breathing. Jordan is trying to advocate for Peyton, and it is very hard with this disease being so rare and with so many doctors who are just not familiar with it,” Chastain said.
Jordon Mixon remains optimistic.
“I know that with her condition we have to expect things like this to come. I am still praying and believing for a miracle for her though,” she said.
The Mixons are eager to come home from the hospital to share more fun and smiles. They are hoping to be able to make it to Disney World.
“Making memories with her is so important to us – family photos and things like that that we will have forever,” Jordan said.
Donate to the Mixon family at gofund.me/5ca9765b or an account for Peyton’s family established at United Community Bank.
Details: Visit curegm1.org.